Are you satisfied with treatment?
Most people with multiple sclerosis (MS) are satisfied with their treatment, according to the results of an Internet survey conducted in 2011. The survey, called the BEFORE study, included 2,800 people. Results were presented at the 2012 American Academy of Neurology annual meeting (Becker and colleagues. Abstract P06.200).
The people responding to the questionnaire had typically had MS for about 10 years, and had little or no disability (EDSS score 2 or less). Only 10% said they were not satisfied with their treatment. However, about 40% had gone off their medication at some point, primarily because of side effects or injection-site problems.
A concern raised by the study was whether treatment was working well. Among those with a relapse in the previous year, two-thirds were on a treatment at the time and their MRI showed numerous lesions.
When asked what new treatments could offer, nearly everyone said that effectiveness in reducing relapses and disability progression was the most important consideration. Regarding how the drug would be taken, 75% wanted an oral therapy, 11% wanted a subcutaneous (under the skin) injection, 9% wanted an intravenous (into the vein) drug, and 5% wanted an intramuscular (into the muscle) injection.
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